About the PSP Society of Canada
Our vision is for every Canadian to have access to support, treatment and, ultimately, a cure for PSP and related illnesses.
About Us
We are a group of volunteers dedicated to growing a national organization serving Canadians affected by PSP, MSA and CBD. All our board members have personal connections to the illness through our loved ones.
Having experienced the frustration felt by so many families affected by rare diseases – difficulty getting a diagnosis, healthcare teams unfamiliar with the illness, lack of information and support – we are passionate about not wanting another family in Canada to face the same challenges.
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We have benefitted from relationships and training opportunities with other international PSP charities and rare disease umbrella organizations including CORD (Canadian Organization for Rare Disorders) and Eurordis (Rare Diseases Europe). This has helped equip us in our mission to grow support networks, provide educational materials, connect with healthcare professionals, and stay up to date on current research directions.
Our Mission
Provide information and support to families and care-partners. Collaborate with healthcare professionals to increase awareness and improve treatment. Fund research, leveraging partnerships with other charitable organizations for maximum impact.