What We Do
We are a group of volunteers dedicated to growing a national organization serving Canadians affected by PSP, MSA and CBD. All our board members have personal connections to the illness through our loved ones.
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Having experienced the frustration felt by so many families affected by rare diseases – difficulty getting a diagnosis, healthcare teams unfamiliar with the illness, lack of information and support – we are passionate about not wanting another family in Canada to face the same challenges.
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We have benefitted from relationships and training opportunities with other international PSP charities and rare disease umbrella organizations including CORD (Canadian Organization for Rare Disorders) and Eurordis (Rare Diseases Europe). This has helped equip us in our mission to grow support networks, provide educational materials, connect with healthcare professionals, and stay up to date on current research directions.​
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PSP Society of Canada is an Equal Opportunity Employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability, or veteran status.
Community Engagement Coordinator
Summary
Our support services enrich the lives of those experiencing PSP, CBD and MSA. Help us get the word out with regular social media, blogs and other content. The community manager oversees the credibility of news we share from the rare disease ecosystem. Become the go to resource for the newest research and most impactful events relevant to our community. Collaborate with other stakeholders and maintain a steady cadence of content to expand our reach.
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Key Responsibilities
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Create and share content across social media platforms & our website to inform visitors of upcoming events and services.
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Share relevant news by writing shorts blogs and press releases for publication online.
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Validate news sources and assess the credibility of research before publishing.
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Act as an ambassador for the PSP Society of Canada and our stakeholders.
Qualifications & Aptitudes
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Previous or current experience with content creation.
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Proficient with content creation technology and basic website design (Canva, Wix etc.)
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Self-motivated and independent - suited for remote work.
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Organized and committed - thrives working to a regular schedule and cadence.
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Pass a police background check.
Reports to:
General Manager​