What We Do
We are a group of volunteers dedicated to growing a national organization serving Canadians affected by PSP, MSA and CBD. All our board members have personal connections to the illness through our loved ones.
​
Having experienced the frustration felt by so many families affected by rare diseases – difficulty getting a diagnosis, healthcare teams unfamiliar with the illness, lack of information and support – we are passionate about not wanting another family in Canada to face the same challenges.
​
We have benefitted from relationships and training opportunities with other international PSP charities and rare disease umbrella organizations including CORD (Canadian Organization for Rare Disorders) and Eurordis (Rare Diseases Europe). This has helped equip us in our mission to grow support networks, provide educational materials, connect with healthcare professionals, and stay up to date on current research directions.​
​
PSP Society of Canada is an Equal Opportunity Employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability, or veteran status.
Healthcare System Navigator
Summary
Caring for a loved one with a neurodegenerative condition can be overwhelming, confusing and lonely. Few have the time, energy or resources to understand what publicly available supports exist and how to access them. Healthcare navigators understand the public healthcare system and know how to leverage the support of allied health professionals in their province. You will share your knowledge face to face with care-partners and patients ensuring they receive all the care and support they are entitled to.
Key Responsibilities
-
Communicate one on one with patient families in designated provinces.
-
Provide guidance on maximizing community and provincial resources for both patients and care-partners.
-
Act as an ambassador for the PSP Society of Canada and our stakeholders.
Qualifications & Aptitudes
-
A degree in healthcare administration, nursing, social work, public health, or a related field preferred.
-
Certification as a Patient Navigator, Case Manager, or in a related healthcare support role preferred.
-
A strong understanding of how healthcare systems operate, including knowledge of medical terminology, and treatment pathways.
-
Ability to identify and connect patients with the appropriate healthcare services, specialists, and resources to meet their specific needs.
-
Ability to navigate ethical dilemmas and make decisions that prioritize patient well-being and autonomy.
-
Strong empathy and compassion for patients and their families, ensuring that their needs, concerns, and preferences are at the forefront of decision-making.
-
Proficient competency in digital communication tools (Zoom, Email etc.)
-
Self-motivated and independent - suited for remote work.
-
Flexible and organized - comfortable with irregular workload demands.
-
Pass a police background check.
Reports to:
Board of Directors​