What We Do
We are a group of volunteers dedicated to growing a national organization serving Canadians affected by PSP, MSA and CBD. All our board members have personal connections to the illness through our loved ones.
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Having experienced the frustration felt by so many families affected by rare diseases – difficulty getting a diagnosis, healthcare teams unfamiliar with the illness, lack of information and support – we are passionate about not wanting another family in Canada to face the same challenges.
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We have benefitted from relationships and training opportunities with other international PSP charities and rare disease umbrella organizations including CORD (Canadian Organization for Rare Disorders) and Eurordis (Rare Diseases Europe). This has helped equip us in our mission to grow support networks, provide educational materials, connect with healthcare professionals, and stay up to date on current research directions.​
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PSP Society of Canada is an Equal Opportunity Employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. All qualified applicants will receive consideration for employment without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, disability, or veteran status.
Scientific Advisor: Ophthalmologist
Summary
PSP Society of Canada Scientific Advisors ensure that our programs, resources and advice are credible and grounded in the latest scientific research. You will be the organization's expert guide on illness symptoms related to your expertise.
Key Responsibilities & Commitments
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Participate as the scientific lead in 1 "Ask the Expert" facilitated virtual webinar per year.​
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Evaluate advice and resources to be shared on our Living FAQ monthly.
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Be available periodically to field questions from the patient community through the Board of Directors.​​
Qualifications & Aptitudes
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A genuine compassion for supporting patients and care-partners living with prime of life degenerative neurological conditions.
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Strong understanding of the clinical, research, and patient care landscape surrounding neurological diseases in Canada.
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Excellent communication skills, with the ability to translate complex scientific concepts into accessible information for diverse audiences.
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Experience in collaborating with healthcare professionals, researchers, and patient advocacy organizations is highly desirable.
Reports to:
Board of Directors​